Following the loss of our twelve year old son Alex on 5th September 2011 to Non Hodgkin Lymphoma (NHL) we formed the Alex Hulme Foundation as a legacy to him in recognition of the courage and bravery he showed during his illness but also because we knew he would want to help others who found themselves in the same position as he did.
We discovered that there needs to be a massive improvement in the level of knowledge about NHL in children. Due to the relatively low number of cases each year, eighty in the UK, and the reasonably high success rate, currently 83%, NHL isn’t seen as a high priority for funding therefore, it has been largely non-existent in the past. Due to this lack of funding for research, the treatment Alex received was essentially based on past experience.
The overall purpose of the Alex Hulme Foundation is to enhance research into Non Hodgkin Lymphoma in Children.
The aim of the Alex Hulme Foundation is to make a difference for future sufferers of the disease. Through donated funds we will allow researchers to build on their knowledge into the disease. This in turn will provide clinicians with the ability to offer a more individualised and more flexible treatment plan to children diagnosed in future meaning a greatly improved long term prognosis.